Time has seen management for Cystic Fibrosis (CF) advance drastically, most recently in the development of the disease-modifying triple combination therapy ivacaftor/tezacaftor/elexacaftor. There is currently limited evidence regarding both the global epidemiology of CF and access to this transforma...tive therapy - and therefore where needs are not being met. Therefore, this study aims to define gaps in access to CF treatment. The results show that a significant CF patient burden exists in countries where disease-modifying drugs are unavailable, and final figures are likely underestimates. This analysis shows the potential to improve rates of diagnosis and treatment for CF, so a higher percentage of patients receive the most effective triple combination treatment.
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interim guidance, 25 November 2024
Examples of small-scale disinfection products for safe drinking water
Guide pratique d’utilisation à l'usage des médecins, pharmaciens, infirmiers et auxiliaires de santé.
Participatory Learning and Action Planning; A Facilitator's Guide
These draft guidelines are designed to encourage humanitarian and development non-governmental organisation (NGO) practitioners to think about the types of scientific information and expertise they may need, how to access and use them, and how to ensure that they are applied in an ethical and accoun...table manner. The publication addresses the need to defines the problem and the purpose of integrating science with the users of science, issues around access to science and understanding scientific information, how to apply the science and the important of monitoring and evaluation of impact. Case studies include a project from Christian Aid and the Evangelical Association of Malawi which brought together community members from Village Civil Protection Committees with scientists from the Department of Climate Change and Meteorology and District Council staff responsible for water management and disaster risk reduction in order to tackle a problem of flooding
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La respuesta a los brotes de cólera suele centrarse
en los aspectos médicos que son importantes para que disminuya la mortalidad. Sin embargo, para limitar la propagación de la enfermedad se necesita una respuesta más integral. Dado que la respuesta a los brotes a menudo la dirigen profesionale...s médicos, pueden quedar desatendidos otros aspectos tales como las cuestiones medioambientales o de comunicación.
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Esta guía ofrece al personal de salud y a los integrantes del
Comité Operativo de Emergencia recomendaciones prácticas
para facilitar su trabajo en los preparativos para desastres.
Presenta los principales aspectos para elaborar un Plan Local de
Emergencia para el sector salud, un instrumento... básico en los
preparativos del sector, que se realiza mediante un proceso alta-
mente participativo entre los actores del sector salud y la comunidad.
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Guide de poche pour l’agent de santé en première ligne
Ce guide s’intéresse plus particulièrement à certaines fièvres hémorragiques virales (FHV) Ebola, Marburg, FHCC, fièvre de Lassa [et Lujo] – qui surviennent en Afrique et risquent de donner lieu à une transmission interhumaine. I...l ne traite pas de la prise en charge d’autres infections virales, comme la dengue, la fièvre de la vallée du Rift et la fièvre jaune, qui entraînent également des manifestations hémorragiques, mais pour lesquelles il n’y a pas de transmission directe d’une personne à une autre
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This guide is an introduction on how to integrate logistics management information systems (LMIS) with geographic information systems (GIS). It covers the value of integrating these two systems, the steps in assessing if it is currently viable to link the systems, how to set the linkage, the process...es for using LMIS within a GIS platform, and finally how to sustain the linkage. The aim of this guide is to assist logistics managers, decisionmakers and technical experts in understanding the value of integrating GIS and of the process involved in integrating these two systems.
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Disaster Recovery Toolkit
Disaster Recovery Toolkit
Disaster Recovery Toolkit
This paper has been commissioned by RedR to identify gaps in skills, technology, and knowledge in urban humanitarian response in order to inform RedR’s project Ready to Respond which is looking to address these gaps in two specific areas:
Water supply, sanitation, and hygiene; Shelter res...ponse to earthquakes
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Population-Based Survey on Perceptions and Attitudes about Peace, Security and Justice in Eastern Democratic Republic of the Congo